Tag Archives: Williams Syndrome

Five Inspirational Books That I Love

This week, one of Mama’s Losin’ It’s writing prompts is “book review”. Also, a few days ago, the Blog Everyday in May prompt was “five books I love”. I don’t participate in Blog Eveyrday in May, since I only discovered it yesterday, but I love to find writing prompts. Therefore, I thought I’d combine the two and list five books I love. As it turns out, all are inspirational books.

1. Preemie Voices by Saroj Saigal (2014). This book is a collection of letters from former preemies, born between 1977 and 1982, that describe their lives now and give hope to parents of today’s premature babies and children. Many years ago, I believe Bill Silverman wrote a book of stories from former preemies titled Small Victories. I could unfortunately not get my hands on this book and am so glad I got my hands on Preemie Voices. It is so validating to know that I’m not alone on this preemie journey, even though it’s a bit annoying that the target audience is parents of today’s preemies.

2. Miracle Survivors by Tami Boehmer (2014). This is Boehmer’s second book of stories from long-term survivors who were said to have incurable cancer. I didn’t read her other book, but I think I’m going to. In Miracle Survivors Boehmer starts by listing characteristics she’s found long-term survivors of thought-to-be-incurable cancer have in common. Each contributor then tells his or her story and ends it with life lessons they’ve learned through their journey with or their overcoming of cancer. Though some people use alternative medicine and claim to have been cured by it, this is not prominently promoted. Above all, the survivors promote being on top of your own care and advocating for yourself. I feel this is an importnat message even to those who are in the healthcare system for other reasons.

3. Angels at Our Table, 2nd edition by Ann Breen (2012). This is a book of stories from parents of children (and some adults) with Williams Syndrome. People with Williams Syndrome usually have an intellectual disability and may have many health problems, but they also commonly have a very sociable personality and cute facial features. Though many families struggled with getting their children properly diagnosed and treated, particularly back when Ann Breen’s daughter was young in the 1980s, the message in the book is one of appreciation. The importance of support is also highlighted, as Ann Breen founded the Williams Syndrome Association of Ireland. I for one happen to actually like inspirational books about people wiht disabilities, so this one is a good one for me.

4. Real Families, Real Stories by Stephanie Sumulong (2014). This is a book of stories from family members of children (and again some adults) with Down Syndrome. The stories are very short, which is a bit disappointing, because i don’t get to get a deeper understanding of these families’ lives. The intention of the book is to celebrate people with Down Syndrome. For this reason, it is also sad that no adults with Down Syndrome were interviewed. However, the stories do cover many aspects of families’ lives with Down Syndrome, including prenatal diagnosis, adoption, the heart defects that commonly occur in Down Syndrome, and sibling perspectives.

5. Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries by Amy Newmark, Carolyn Roy-Bornstein and Lee Woodruff (2014). I have not yet finished this book, but so far, it seems wonderful. Having myself acquired possible brain damage shortly after birth, I find the stories of brain injury survivors somewhat relatable, though of course I did not have a life prior to brain damage. A few months ago, I read a Dutch book of stories from people who had invisible disabilities due to brain injury and I loved it. Being Chicken Soup for the Soul, the stories of course have been selected for being inspirational, but so far, it looks like many aspects of life with TBI are covered.

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Week of August 11 to 17, 2014 #Mumslist

This week, Mums’ List is being hosted by Aby of You Baby Me Mummy because Hannah of Mums’ Days is on holiday. I haven’t reflected back on the week yet, so this is the perfect time to do so.

Real Life


  • Haven’t been too crafty this week. Finished a card for my mother. It was about time, because it’s an extremely late thank-you card for my birthday presents. I forgot to scan it before I put it in an envelope, so no picture, sorry. Other than that, I have only just started working on the Christmas card I said I’d make this week.

  • Received my art doll for a mixed media swap I’m in. Haven’t even started working on the one for my swap partner. The deadline isn’t until October 1.

  • Ate out twice this wek. Once, on Thursday, I took my husband to the local Chinese restaurant. I loved my gon bao chicken. On Friday, we ate out while we were shopping for jeans at a nearby wholesale store. Thankfully, I still fit in the same size I had last year – which is still three sizes above the size I always had, but well.

  • Had a horrible week re my eating habits. Binged on winegums on Friday so badly that I was sick all day yesterday. Got fries today anyway. Had binge eating episodes on two other days this week.

  • Did go to the gym on Thursday.

  • Both my computers are still working, but now my braille display is acting up.

  • Have been reading Angels at Our Table edited by Ann Breen. It’s a book of stories from families with Williams Syndrome children.

Blogging / Social Media


  • Started over with my Facebook page – again. This time, I was actually planning to stick to it, but since I hardly do photos and since WP won’t let me share posts to both my page and my profile, I really don’t know. I could seriously use some advice on what’s the point of a Facebook page and how to use it.

  • Did write not just one but two original blog posts.

  • New blog discovery: Edspire.

  • Most inspiring read: Emma’s guest post on fetal valproate syndrome for Victoria Welton’s blog. This is something I want to learn more about.

I don’t really have goals for the upcoming week, other than finally kicking binge eating’s arse. I have a dietician’s appointment on Friday and a therapy appointment on Tuesday. Will discuss the binge eating issue with my therapist – the dietician already knows.