Tag Archives: Progress

Upbeat #WotW

Another more than a week has gone by. This week was pretty intense. I have been in a relatively good mood most of the time. Also, I made some good progress within the last few days. For this week, I am participating in Word of the Week again and my word is “upbeat”.

Monday started out not too great. I had a conflict with one of my activity staff. In the morning, I had been busy with quite a difficult soap making project and had asked for help a little too many times. My activity staff had, or so she said, been attending to me constantly. She didn’t say so till the end of the morning and said that I couldn’t make soap in the afternoon, because she’d be the only staff in attendance. I was pissed and had an anger outburst. After I calmed down a bit the nurses asked what was up. I told them and a nurse accompanied me to the activity room after lunch to talk to the activity staff. Both of us had been overreacting a bit it turned out and she had been offering help sometmes when it wasn’t needed. In the afternoon, I made an easier-to-make soap and did it mostly independently. On Tuesday and Wednesday I also made soap and had a lot of fun doing so.

On Thursday, I would be leaving for home in the afternoon. I had gotten a letter from the local social consultation team and had handed it to my social worker. I had some trouble scheduling an appointment with her, but eventually, we worked something out. Turned out the letter wasn’t anything we needed to do anything about.

Early in the afternoon, I got a call from my independent consumer advocate telling me that he had made an appointment for me to go take a look at a day activity place next Tuesday. The place had been mentioned during the kitchen table talk with the social consultant and independent consumer advocate, but I had apparently erroneously thought that my town didn’t have a contract with this organization. I will visit the place on Tuesday at 11AM. Depending on how I like that place, we may take a look at another place that’s part of the same organization later on.

The consumer advocate also told me that the social consultant would be calling me about an appointment with the mental health agency for home support services. She called me while I was in the cab on my way home. I will have a meeting with the mental health agency’s home support person on Wednesday at 9AM. My consumer advocate will also be attending that meeting with me. If this and the day activity thing go well, the social consultant is hoping to proceed with getting things arranged that same week, because she will be on maternity leave after that. For those who don’t know, a social consultant is a local civil service person who makes decisions about funding for community care. Because I am now institutionalized and will be going home, a new decision regardng funding will need to be made. Of course, I don’t expect things to move that fast and the social consultant can of course hand over my case to a colleague. Ttill I’m hoping they’ll reach a decision about funding for home care and day activities within a few weeks. That will make it much easier for me to prepare for actual discharge out of the institution.

I went home Thursday evening. On Friday, my husband had to be at work by 6AM, so the alarm clock went off at 4:20. I slept some more but, once my husband was off to work, I could hardly sleep any longer. I had somewhat of a difficult morning, but practising mindfulness helped me get through it. I was upbeat in the afternoon, when a Facebook friend who also makes soap came by. I had met her specifically through soap making, but we also had some fun chatting. We made a lip balm, sugar scrub and goat’s milk melt and pour soap with honey.

Today, I’m tired but still upbeat. The nurses made us fresh macaroni. That’s one of my ward’s summer traditions. I must honestly say my husban’ds macaroni is better, but then again this macaroni is much, much better than the lame excuse for food we get everyday.

Like I said, except for Monday, I’ve been feelign mostly upbeat this week. I am still loving my soaping craft and an looking forward to the progress we’ll make next week.

The Reading Residence

New Year, New Word for 2016

Last year, my word for the year was “nurture”. Because it means so many things, I can say that I more or less followed this theme. For example, I bought some new beauty products that I’ve been eagerly using. I also started up yoga, although I haven’t been practising much lately.

In other ways, however, I didn’t really nurture myself. I kept on overeating, maybe even worse than in 2014. The beginning of 2016 isn’t good in this department either.

When it comes to my word for this year, unlike last year, one hasn’t been on my mind for a long time. In fact, I am still not sure that this word is the one I should choose. It sounds a bit vague. The word is “progress”. Related words, like “move” and “forward”, have been going through my mind too, but “progress” seems better.

In some ways, we always make progress. We progress through life, whether we move forward or not. We get older, after all. Progress doesn’t necessarily mean positive change. A progressive disease gets worse, after all.

So am I setting myself up for failure, or for guaranteed success, by being as vague as I am with this choice of words? Possibly. ONly time will tell.

I will, however, share what I think progress means when applied to what’s going to happen in 2016. Firstly, it means moving forward on the road I’ve embarked on. In some respects, I should not wish to do this. LIke, I gained weight in 2015 and should definitely not follow along on this route.

I mostly mean progress in terms of my move out of the psychiatric institution. I need to keep progressing on this route towards independence. Way too often, I'm tempted to just give up and go back into my comfort zone. I need to remind myself that this is the year to take leaps forward, to grow, to progress. They don't need to be huge leaps. Sometimes, they can be tiny steps. But the road has been paved and I'll follow it.

I just realized too that “progress” can mean continuing to follow the path I’ve embarked on in 2015. Like I said, I didn’t nurture myself in every respect, but I did in some. For 2016, I need to continue pursuing self-care, which was my word for 2014. I need to continue nurturing myself, which was my word for 2015. I ned to progress along the road I’ve paved for myself.

Mama’s Losin’ It

Appreciating Progress

There is a lot of debate in the disaiblity community about what to expect from children with disabilities. Some people say we need to treat them the same we would typical children, because the world isn’t going to adapt to them when they’re grown. Others say we need to stop expecting and start encouragign, valuing and being grateful.

Both these philosophies have some value. I derive my quality of life from meaningful activities rather than meeting expectations of measureable progress, but measureable progress is what politicians and insurance companies look for when fudning or deciding on funding of our care.

It is my belief that expecting a child to be the best self they can be, does not contradict being thankful for the little things they achieve. However, for this, we need to let go of comparing our children to others at all times. I can see how life skills training is important, because, well, the care system is on a tight budget and that isn’t likely to get ay better. But that doesn’t mean that as people with disabilities, as parents, as friends and family, we must take these skills for granted. They’re important, yes, but they don’t come naturally.

It’s true that health insurers won’t care to appreciate the little achievements your child has made, particularly if they don’t end up costing the insurer less money. Same for future employers if the grown child’s skills won’t make them more employable. That doesn’t mean you as a parent need to stop appreciating your child’s progress. Also, as parents, you will more than a future employer or health insurer appreciate progress that is not measureable, such as the child growing into a strong-willed, kind, honest individual, for example. Continue to appreciate this.

I derive quality of life from meaningful activities, from contact with caring relatives, from spiritual growth. These don’t cost my health insurance company any money. If you as a parent don’t appreciate your child’s activvities, friendships and spirit, who will? Friends, if they’re genuine, appreciate your child for who they are, not for the life skills they have or grades they earn in school.