#Depression: What It Feels Like to Me

I have had experience with low moods since I was a child. Nonetheless, until a few months ago, I was never diagnosed with depression. During the last round of diagnostic revisions, my psychologst decided to diagnose me with depressive disorder NOS along with dependent personality disorder and borderline personality disorder traits. I am not sure I agree and my psychologist admitted at first that it was more her needing to give me a diagnosis on axis I to warrant me staying in the institution than my actually needing treatment for this.

Today, Aspiecat described what depression is like for her. I could relate to some of these experiences, but nto others. I am going to describe what it’s like to be depressed for me.

Let me first say that low moods are my default. I am pretty sure that dysthymia, ie. chronic but mild depression, is a more useful diagnosis for me than depressive disorder NOS. Apparently though my psychologist doesn’t feel I meet the criteria for that. Really not remembering a prolonged time when I did not feel low makes me wonder whether I’m truly depressed or just pessimistic. I know that depression and optimism do not mutually exclude one another, but I tend to gravitate more towards the negative than the positive.

Then there is the state, as opposed to the trait, of being depressed. Like Aspiecat, I experience two forms of depression: the first in which I feel numb and inert and the second in which I mostly feel despair, sadness and often anger. The former tends to last longer and be harder to overcome. During this state, I sleep more than usual, eat irregularly but usually more than normal, am slower than usual and generally unmotivated. I don’t usually experience the extremest of dark thoughts in this state. Rather, I worry and feel a bit anxious. I may experience suicidal ideation during this state, though it’s rarer than when I’m in my state of despair. I am also less likely to act destructively, unless you count binge eating. When I do experience suicidal ideation in this state, it’s more of a logical, thought-based kind focused on self-hate rather than an active wish to die. I just can’t be arsed to care about life.

In the state of what Aspiecat refers to as meltdown, I, like her, experience all kinds of negative emotions. I think I may be somewhat alexithymic (unable to read my own emotions) too. I often express my emotions as anger when I’m in this state anyway, even though I think I experience many other emotions. I am more likely to experience suicidal thoughts and to engage in destructive behaviors in this state. I am usually agitated rather than slow.

Unlike Aspiecat, I prefer the state of despair to the state of numbness and inertia. There are several reasons for this, one of which may just be the fact that I’m currently numb and not liking it. Any emotion seems better than this state of inertia now. I however also feel that my despair is more actionable, because it tends to be more situational.

Other people also tend to understand my state of meltdown more than my state of inertia. They see me lying in bed all day as a choice, whereas when I’m in meltdown, they see my despair. They may not accept my agitation in this state, but at least they notice that I’m not doing well. My medication also tends to help with this state more than with numbness. I do take an antidepressant in addition to an antipsychotic, but I’m not so sure it helps with my low moods. The antipsychotic and maybe the antidepressant too do take the edge off of my agitation.

Unfortunately though, people see my state of despair as more needing treatment than my state of numbness. This may be because I don’t tend to respond well to psychotherapy and medication-wise, there is simply more to be done against agitation. I take a high dose of an antipsychotic on a daily basis. I also have a low-potency neuroleptic, an anti-anxiety benzodiazepine and a sleeping pill (also a benzo) as PRN medications. All of these can be seen as depressants. Like I said, I do take an antidepressant too, though in a low dose. I am not so sure it works, but then again it isn’t a great medication for the kind of atypical depression I experience. By this I mean that it isn’t shown to be too effective with depression that is characterized by inertia, eating and sleeping too much and general anhedonia (numbness). This kind of depression is particularly hard to treat.

Because other people are more bothered by my meltdowns than by my state of anhedonia, I also feel they tend to want me to be numb rather than agitated. I mean, of course they don’t actively want me to be numb, but they see it as less of a problem, because it causes little disruption to others. I go along with this and have never asked for more help, medication-wise or otherwise, with my inertia-based depression. I am not so sure that I should.

Review: Bee Good Lip Balm Trio

Last month, my husband took my Burt’s Bees lip balm that I had bought a long while before (and wanted to review but never did) home with him. I make my own lip balms, but there wasn’t one he liked. Quite honestly, most that I make are way too hard for my liking too. That being the case, I needed, or at least wanted, some new lip balm. I checked LookFantastic.com, because I’d bought my Burt’s Bees lip balm there. However, even though I loved it, I didn’t want the same balm again. That’s me being adventurous.

Bee Good Lip Balm Trio

I don’t remember whether I found the Bee Good lip balm trio in the Christmas selection or in the general gift finder. The packaging looks pretty appropriate for the holidays or so I’m told. I loved the shape of the packaging, though the lip balms didn’t seem to fit into it neatly side by side. The biggest drawback of the packaging was that it was hard to open without tearing it up, at least with my poor fine motor skills. The packaging should be reuseable, but I preferred to just let the lip balms sit beside my sink.

There are three lip balms in this set, of course: vanilla & honey, lime blossom & honey and raspberry & white chocolate. Each is supposed to intensely repair dry, chapped lips. They are enriched with British beeswax. That’s not surprising, as I also always use beeswax in my lip balms and haven’t seen any recipes that don’t use it. However, I tend to think it’s the beeswax that makes my lip balms so hard. These Bee Good lip basm are surprisingly soft.

Each tube has what is called a tapered delivery tip. I don’t know what that means, but it’s supposed to make application easier. Indeed, it’s pretty easy to apply just the right amount of lip balm, at least once I figured out how the tip works. Also, the tip looks like it’s quite hygienic.

Bee Good Raspberry & White Chocolate Lip Balm

I started out by trying the raspberry & white chocolate lip balm. I loved its scent. I was a little surprised to find what felt like exfoliant on my lips. That I think just meant I applied a little too much.

Bee Good Vanilla & Honey Lip Balm

I later tried the vanilla & honey lip balm. This lip balm’s scent was even better. I love vanilla and honey and both could be easily smelled.

Bee Good Lime Blossom & Honey Lip Balm

Lastly, I tried the lime blossom & honey balm. That one’s scent was just too citrus-y for my liking and I didn’t smell the honey. Now I hadn’t expected to like that one, so it wasn’t too big of a disappointment.

I have this weird experience where, though my lips could sure be repaired by lip balms, they feel worse after the lip balm wears off. That is no different with this trio, but at least it isn’t worse. Overall, I like this set.

Classes #FridayReflections

It’s still Thursday in my part of the world, but the #FridayReflections linky has already opened. This week, one of the prompts asks us to decide which class from school or college we’d like to take again if we could.

There were many subjects in high school that I liked. I was big on politics at the time and had a particularly clueless social studies teacher. He once made three big factual mistakes in a five-minute lecture on the elections. In my memory, I corrected him. I couldn’t do that now, as I barely know who’s on the government now. So maybe I’d do social studies again, but hopefully with a more knowledgeable teacher.

I would also love to go back to English class with Mr. E, who had worked a year in the United States while an American teacher came to our school in the Netherlands. This was when I was in eighth grade and could barely understand the American teacher. I wasn’t particularly good at English in seventh and eighth grade. In ninth grade, I was angry with Mr. E for telling me he had to specially type his tests for me instead of handwriting them so I’d better study for them. You can bet that as a fifteen-year-old adolescent, I didn’t bother. From tenth grade on, I loved English though. I had become an avid Internet user over the summer break and had discovered that most valuable information I wanted to read was in English. I became quite proficient at it as I started an online diary (which later morphed into a blog) in the fall of 2002. I loved Mr. E’s stories of his time in the United States, so maybe I’d take his class again.

The first class that came to mind though when I read this prompt, was not a high school class. It was my college psychology class. The teacher was thought of as boring by most students. Because his class was at the end of the day, many students would rather catch an earlier train home than go to his class. You see, we were part-time students, taking our classes on Mondays in the afternoon and evening, and this professor’s class took place from 7:30 till 9:00 PM. Many students, including myself, also didn’t live in the college city, hence the need to take the train home.

This professor though was one rookie lefty and I seemed to be the only one who liked this. He threw Socialist Party merchandise into the auditorium in the days leading up to the 2006 parliamentary election. I was a Socialist Party member, so I didn’t sign the complaint he got for this. Not that I would have signed it had he shown a conservative affiliation either. I did sign a complaint about the first test we got in this class. I still don’t remember why I signed it, but most likely it was largely due to peer pressure. This was obviously before results were in, but I ended up scoring a B.

Looking back, I would’ve loved to attend all of his lectures rather than catching an early train. He had a great sense of humor. Just this morning, I recalled the tale he told us about getting a referral to a psychiatrist for wondering whether the fact that he acquired a spinal cord injury early in life and had to be in rehabilitation a lot changed his personality. The psychiatrist barely listened before writing him a script for an antidepressant. I remembered this tale because, after yesterday’s post, I was wondering what my motor difficulties could be diagnosed as, if anything. If I ever ask my GP to refer me for diagnosis for this, I hope I won’t run into a physiatrist or neurologist with the same attitude as this professor’s shrink.

I got an A for the second test in this class and a B for my research project. I would love to do the research project again, but would choose a different topic. I had many topics in mind that were disorders I later ended up being diagnosed with, like borderline personality disorder, dissociative identity disorder and autsm. I finally settled on the subject of mild intellectual disability though. Maybe I’ll do a similar project one day on one of the topics I had in mind then.

Living my Imperfect Life

Adaptations I’ve Used for My Disabilities

A few months ago, I wrote a post in which I described my limitations in as much detail as I could. I had just agreed to settle on a brain injury diagnosis rather than autism, so had to figure myself out all over again. Since then, that diagnosis was revised several more times and I finally decided to want a second opinion. I want answers to what’s going on with me.

The good point of that post I wrote, however, is that I felt free to describe my limitations in a non-judgmental way. As a follow-up, I am going to write a post today on the adaptations I’ve used throughout my life for dealing with these limitations.

The first adaptations I remember using, when I was about four, were not for what most people think of as my primary disability, ie. blindness. When I was four or five, I had to have my left foot in a cast to prevent my heel cord from becoming too short. This problem is common in children wth motor difficulties like cerebral palsy, though it occasionally happens to children with other neurological conditions too. I also had limited strength in my hands, so I got to use scissors which bounce back automatically. When I finally got to use a Braille typewriter, it had lengthened keys which were easier to press, too.

When I went to the school for the visually impaired at the end of Kindergarten, I was introduced to large print adn later Braille. I started learning Braille when I was seven-years-old. Because I was a print reader before I became a Braille reader, I had an advantage and a disadvantage. I could already read and knew my letters, but Braille wasn’t my first written language. I didn’t become truly proficient at Braille till I was around twelve and still can’t read it as fast as some blind people.

Apparently, around age seven, I had enough vision to ride a bike. I didn’t have the balance though. I still don’t know whether it was my parents being pushy or I truly had enough vision to safely ride a bike, but in any case I got a large trike paid for through the city department of disability services. My parents transported it to our new city when we moved when I was nine, even though this required approval from the authorities. I used the tricycle for about five years, until I became too blind to safely ride it even for purely leisurely purposes in my quiet neighborhood.

By the time I transferred to the school for the blind at age nine, I no longer needed most adaptations for my motor difficulties. I could use a regular Braille typewriter and in fourth grade, we weren’t crafting anymore anyway, so no scissors. I had also by this time become a full-time Braille user, though particularly in fifth and sixth grade I still peeked at the large print atlas every now and again. I got a handheld magnifier for my birthday or St. Nicholas around that time, because without it I couldn’t use the atlas. I had a large collection of tactile maps too, which I also loved.

When I was eleven, I got my first laptop with Braille display. I had occasionally used my parents’ computer before then, but had by this time long been too blind to even see very large letters on the screen. I tried for a bit to use a screen magnifier on the school computer, but I quickly learned to use Braille and syntehtic speech on my own computer.

I also had a white cane, of course. I started cane travel lessons when I was around seven, but rarely used my cane until I was fourteen. Then, when I had entered eighth grade in mainstream education, I had realized I was going to look blind compared to all fully sighted fellow students anyway so I’d better use a cane.

I went through school using mostly my computer for learning. We had a number of tactile educational materials, but I rarely used these. I hated tactile drawings, because I had an extremely hard time figuring them out.

In college and university, I used my computer with Braille display only. I also had gotten a scanner, so that I could scan books that weren’t available in accessible formats. A few years ago, I bought myself an OpticBook scanner that is especially good for scanning books. I rarely used it though, because eBooks became accessible to screen reader users in like 2013. I also rediscovered the library for the blind and last summer, like I’ve said, became Bookshare member.

I never used adaptations for cognitive impairments even after my autism diagnosis. I wanted to learn to use some and I still badly want to get a weighted blanket someday. I also am currently exploring adaptations for my fine motor issues. Because I felt more secure this way, I did for a while use a mobility cane. However, it was too long, then when someone had sawn off a piece it was too short. Also, it isn’t safe to use a mobility cane for me without also using my white cane and because of limited use of my left hand, I can’t use both. The adaptive equipment store does sell mobility canes with the white cane look, but these only have the advantage of making one recognizable as blind. They can’t be used for feeling around for obstacles. I could of course use a mobility cane with the white cane look in place of my white cane when walking sighted guide. However, I have learned to use my white cane for some support. The main reason I choose to use my white cane rather than a mobility cane with white cane look, however, is that I feel too self-conscious. I feel that I’m not mobility-impaired enough for this. I do wonder whether I’d feel more confident walking if I had a mobility cane, but I fear people will judge me for exaggerating my disability.

Dear Psychologist: Why I Believe I’m Autistic (And Why It Matters)

My psychologist wrote the referral letter for my second opinion last Wednesday. Because this second opinion thingy is now becoming real, I have been thinking of why I believe I’m autistic after all – and why it matters. I have tried to explain this quite a few times already, but nobody amongst my staff seems to understand. Because some of my readers just might actually get it, I’m writing it on my blog. I chose to write this in the form of an open letter to my psychologist, but I’m not sure I’ll ever consciously point it out to her.

Dear Psychologist,

You have been telling me ever since you became my responsible clinician in late 2014 that you don’t believe I’m autistic. You initially said brain injury explains my symptoms far better, but you seemed not to care. We needed to treat symptoms, not syndromes, you said. Yet last summer, you changed my diagnosis. And you changed it again. And again. You claim this was at my request. Fair enough, I told you I wasn’t happy with just a borderline personality disorder and adjustment disorder diagnosis and I wanted a second opinion. However, it was you who offered to change my diagnosis to brain injury-related personality change, apparently to avoid me getting a second opinion. I was stupid enough to go along. The further diagnostic changes were solely your responsibility.

Yes, I told you it doesn’t matter whether my diagnosis is borderline personality disorder and adjustment disorder or dependent personality disorder, BPD traits and depressive disorder NOS. To me, neither diagnosis explains why I’ve been having problems all my life. After all, personality disorders first become apparent in a person’s teens or early twenties, not when a person is a young child.

There were – or at least, there should’ve been – many signs of a developmental disability when I was young. Even things that my parents tout as signs of genius, should when combined with the signs that point to delay, signal a developmental disability. Like my ability to calendar calculate. Or my first word. It was “aircraft industry”, echoed from my grnadpa when I was ten-months-old (seven months corrected).

These are cute factoids about me. They don’t necessarily signal autism when taken alone. Then there are the signs that point to delay. I had motor skills delays, but these could be due to dyspraxia or mild cerebral palsy. My parents don’t know whether these were ever labeled as such. I was a toe-walker – still am when stressed. Though I walked on time (at fourteen-months-old), I didn’t sit or roll over without physcal therapy intervention.

My language development was quite advanced. I did reverse pronouns, but my parents say this happened only for a short while. I took many things literally growing up. I also had one word that I’d use obsessively and often out-of-context after another. The psychologist who diagnosed me with Asperger’s in late 2007 brushed this off because I couldn’t come up with examples right then. I can now, but I don’t have the energy to elaborate in English.

My social and emotional development was delayed from a young age on. Even though I didn’t have many meltdowns or temper tantrums until I was about six, I did have my problems. I couldn’t talk to children my age. I had trouble forming friendships. I was even more self-centered than any young child.

When I became aware of my differences, I started acting out. Educational psychologists blamed this on my difficulty adjusting to blindness. What if I’d become aware of my social difference then, too? Even though I didn’t start regularly having temper outbursts till I was about six, I remember head-banging and hand-biting from a younger age. I also had this crawling movement in bed that parents of other kids went to the doctor for when the children were toddlers. Well, let me tell you I did this till I was nineteen.

When I became a teen, I had many more difficulties. One could no longer blame my high IQ, because I was in a high-level high school were 30% of the students were intellectually gifted. Maybe then I did it all because I’m blind, even though no-one at the school for the blind had displayed these behaviors either. Or maybe I was precocious for developing a personality disorder. I guess your logic would go like this.

I could give you dozens more examples of why I believe I’m autistic. I have been thinking on these for the last few days. Many, however, are just too embarrassing to go on my blog.

My parents may not be involved with my care now, but you never asked them participate in a developmental interview. Not that I’d want you to do an autism assessment on me, after all the flawed arguments you’ve spun. You won’t believe that someone with hydrocephalus can be autistic, even though there’s plenty of literature showing that they can. You won’t believe that preemies are more likely to develop autism than children born full-term. I even didn’t bother correcting you when you wrote in my referral letter that I had had a stroke. News flash: an intraventricular hemorrhage, which is the most likely cause of my hydrocephalus but was never ascertained, is not a stroke. I don’t expect you, a psychologist, to know the difference, but then at least stop basing your diagnosis on it.

But you’ll say we should look at symptoms, not syndromes. You’ll say it doesn’t matter for my care whether I’m diagnosed with brain injury, even if it isn’t in my DSM-IV classification, autism or a personality disorder. To be honest, the main reason this whole diagnosis thing is important to me, isn’t care. It’s understanding. I need recognition of my struggles. I need to know I’m not the only one. As much as you hate this, I need something I can google and join support groups for. I’m tired of shooting in the darkness. Granted, care matters too. Personality disorder patients have far fewer self-care problems than autistics and warrant a totally different approach. I wouldn’t mind that approach if it turly worked for me, but it doesn’t. However, I don’t mind having a personality disorder diagnosis along with autism – I had one for nearly three years.

You won’t understand a thing about autistic culture. I won’t explain. I don’t have the spoons for that. (Google the spoon theory if you want to know what I mean, if you even care.) Suffice it to say that autism is not just a disorder – it’s an identity. It’s something, unlike brain injury, that is part of us before we’re old enough to realize it. It’s not a disease – it’s a part of who I am.

Hannah Spannah

A Call to Revive the Concept of “Cousins” in the Autistic Community

Today, I was rejected from a Dutch autistic women’s forum. I had already been kicked off last August for having lost my formal autism diagnosis, but had reapplied because I am in the process of getting a second opinion. Back then, my losing my diagnosis had stirred up a lot of commentary as to why I’d been presenting as autistic for six years – the time that I’d been a member of the forum – if I wasn’t. Well, for one thing, that’s just one professional’s opinion that I’m not autistic, while three others said I am. Not recently, but since when does one lose an autism diagnosis as one ages? However, the fact that the admins doubted I’d get anything but suspicion and hostility if I came back, prompted them to reject me for good. Thankfully, people in other autism groups, especially international ones, were still welcoming and supportive.

Then I read Mel Bagg’s blog post from last month, which was on the subject of autistics and “cousins”. A “cousin” is someone who is not autisitc, but who has some significant experiences that are similar to those experienced by autistics due to a related condition. For example, Mel Baggs tells the story of a person with hydrocephalus who could relate to many of the social and communicative difficulties that autistics experience, but wasn’t autistic. As I have hydrocephalus myself, this struck a chord with me.

Mel Baggs”post is a call to revive the concept of “cousins” in the autistic community. I applaud this, for it’d finally mean I could fully feel in place in the autistic comunity again. I mean, autistic communities used to ask that no neurotypicals join or participate. now they’re asking allistics – a term I’d never heard of but which means non-autistics – to keep out. Though most internatoinal communities who state allistics are not allowed, welcome self-diagnosed autistics, I still feel a bit left out.

Like Mel Baggs says, the autistic community can be very excluisionary. An example is the Dutch forum I got kicked off from. I didn’t know this until I lost my diagnosis, but apparently it has the rule that people who suspect they’re autistic get a year to get a formal diagnosis and if they don’t get it, they’re out. I mentioned this is a women’s forum for a reason, because women have a particularly hard time getting formally diagnosed. The other main Dutch autistic community, open to all genders, doesn’t ask for a formal diagnosis. Another act of exclusion applied by autistic communities is the assumption that Aspies (people with Asperger’s Syndrome) are somehow fundamentally dfferent from other autistics, and subsequently the creation of Aspie-only spaces. Other groups allow “high-functioning” autistics in only. This, obviously, perpetuates the division of the autistic community, which perpetuates discrimination. For example, if Aspies are fundamnetally different from other autistics, people can use the idea that Aspies are not really disabled, which is populated by some, to exclude anyone they see as an Aspie from protection by laws like the ADA. They can also continue advocating for harmful “treatments” against autistic people’s wishes based on the idea that autistics who can advocate for themselves are not “autistic enough”. I don’t say that the autistic community is responsible for discrimination by non-disabled people. I do say that those who exclude some people from the community based on being “not really autistic”, “not autistic enough” or too “low-functioning” or “high-functioning”, do contribute to it.

Back to “cousins”. The criteria for autism keep changing over time. I easily met DSM-IV criteria for Asperger’s Syndrome. I probably meet DSM-5 criteria for autism spectrum disorder too. However, I also have hydrocephalus, which according to my current psychologist, means I can’t be autistic. I believe DSM-IV might agree, though DSM-5 definitely doesn’t. Does the fact that I meet the criteria for an autism spectrum disorder, mean I’m legitimately autistic, or does the fact that I have hydrocephalus, mean I’m not? Really, that shouldn’t matter, if “cousins” are welcomed into the autisitic community again. After all, what counts then is not diagnosis or self-diagnosis, but whether I relate to the lived experience of autistic people. It also means the community can no longer be divided along the lines of stereotypes, formal diagnosis or the lack thereof, or suchlike. Everyone who shares the experience of social and communication problems, is welcome. This in turn means we can form a better front against discrimination, because we no longer fall into traps like being accused of not being disabled enough for protection.

Book Review: Handle With Care by Jodi Picoult

Last June, I got a Bookshare membership after delaying it for years. The proof of disability form had literally been sitting in my drawer since like 2010. Granted, back then people who weren’t U.S. residents or citizens had only very limited access to books, so it was hardly worth it. Since the Marrakesh Treaty though, international distribution of books for the purposes of access for visually impaired people is much easier. Don’t ask me about the technicalities. I’m just happy that most books are now available to me.

I read My Sister’s Keeper by Jodi Picoult in like 2005, when I briefly used the UK’s National Library for the Blind. I was no longer able to use their services after some books were lost on the way back. Yes, they at least used to distribute Braille books to international members only. Anyway, since reading My Sister’s Keeper, I badly wanted to read more by Picoult. Partiuclarly, I wanted to read Handle With Care from the moment it came out. Now, with my Bookshare membership, I got a chance to read it. Because I started reading many other books too, I didn’t finish Handle With Care till yesterday. Here is my review of it. It contains spoilers!

Synopsis

When Willow is born with severe osteogenesis imperfecta, her parents are devastated–she will suffer hundreds of broken bones as she grows, a lifetime of pain. Every expectant parent will tell you that they don’t want a perfect baby, just a healthy one. Charlotte and Sean O’Keefe would have asked for a healthy baby, too, if they’d been given the choice. Instead, their lives are made up of sleepless nights, mounting bills, the pitying stares of “luckier” parents, and maybe worst of all, the what-ifs. What if their child had been born healthy? But it’s all worth it because Willow is, funny as it seems, perfect. She’s smart as a whip, on her way to being as pretty as her mother, kind, brave, and for a five-year-old an unexpectedly deep source of wisdom. Willow is Willow, in sickness and in health.

Everything changes, though, after a series of events forces Charlotte and her husband to confront the most serious what-ifs of all. What if Charlotte had known earlier of Willow’s illness? What if things could have been different? What if their beloved Willow had never been born? To do Willow justice, Charlotte must ask herself these questions and one more. What constitutes a valuable life?

Review

The book, like My Sister’s Keeper is written from every main character’s viewpoint alternatingly except for Willow’s. Throughout the book, the main characters tell the story as if addressed to Willow. In other words, she is referred to as “you” all the time. I like this. Even though Willow doesn’t get a voice till the near end of the book, the other main charactes do give the reader a great insight into her character.

All main characters are very well-formed. Because of this, a lot of other stories are interwoven with the main story of the wrongful birth lawsuit that Charlotte files against her obstetrician. For example, Piper, Charlotte’s obstetrician, is also her best friend. Marin, Charlotte’s lawyer, is dealing with the search for her birth mother. And Amelia, Willow’s sister, struggles with bulimia and self-injury.

Because each charater gives their own viewpoint, both sides of the wrongful birth lawsuit are equally described. Though I hoped most of the time that Charlotte would win, I also symapthized with the other party. I wasn’t sure of the outcome until it was spelled out in the book.

The fact that the book has a lot of twists and turns, so that you’re never sure of how it ends, is mostly a good thing. It ends up being a very bad thing though as I read the last few pages. The book ends with Willow dying, which in my opinion only spoiled the entire book. I mean, there was some point to Anna dying in My Sister’s Keeper. I didn’t see that this time. As such, the book definitely deserved a five-star rating before I’d completely finished it. Once I’d read those last few pages, not so.

Book Details

Title: Handle With Care
Author: Jodi Picoult
Publisher: Atria Books
Publication Date: March 2009

Diagnonsense, Oh Diagnonsense!

A few months ago, I wrote about my changing diagnosis. My autism diagnosis that’s been confirmed three times since 2007, was removed. That left me with just borderline personality disorder (BPD) as a diagnosis. If you thought I gracefully accepted this, you do not know me. I consulted with the patient liaison person at my institution, who recommended I seek a second opinion at another hospital. Now, three months on and we’re back at square one, and it’s not because an independent provider agreed with my psychologist.

On August 15, I talked to the patient liaison person, who on that same day E-mailed my psychologist asking her to make the necessary arrangements for me to get a second opinion. Instead, my psychologist told me she wanted to contact a psychiatrist at the brain injury unit first to inquire about the diagnosis of autism in people with brain injury. This doctor told her that indeed autism shouldn’t be diagnosed in people with brain injury, but the same is true of BPD. My psychologist would need to diagnose personality change due to a general medical conditon instead. I stupidly agreed with her changing my diagnosis herself rather than sending me to an independent psychiatrist or clinical psychologist.

My psychiatrist, who is the head clinician responsible for my care, however, disagreed with my psychologist’s diagnosis. My named nurse said they were throwing around all sorts of diagnoses at my treatment plan meeting last month. Eventually, my psychologist informed me they’d settled on dependent personality disorder, borderline personality disorder traits and a developmental disorder NOS. I hate the DPD label, but can see how I might have some of its features. I needed to see my treatment plan to see what they’d meant with developmental disorder NOS, which isn’t a diagnostic code in DSM-IV unless prefixed by “pervasive”. That would essentially mean autism. As it turned out, they hadn’t settled on this diagnosis, as the developmental disorder was gone.

Instead, I now have DPD, BPD traits and depressive disorder NOS. I asked my psychologist whether this was a coding typeo, but it wasn’t. Her explanation was that I may formally meet the criteria for this, but the main reason for the diagnosis is for insurance purposes. You see, I can’t be in the mental hospital without a diagnosis on axis I (anything that isn’t a personality disorder). A nurse even twisted my psychologist’s actions like she’d done me a favor.

Last week, when I found out my final diagnosis, I lost it pretty much and was considering checking myself out of the institution. My psychologist was called, because the nurses thought I said I was definitely leaving, which I can’t remember having said. My psychologist encouraged me to leave right then, which I refused. My husband instead came to pick me up thee nxt day for a night at home to have some distance.

Today, I spoke to the patient liaison person again. She was not happy at the fact that my psychologist had failed to cooperate with me in getting me a second opinion. This essentially means we’re back at where we started and I’m probably going to ask my psychologist to get me a second opinion again soon.

Still Afraid

One of Mama’s Losin’ It’s prompts for this week is to write about something you were afraid of as a child and to share whether you’re still afraid of it. Immediately, an interaction I had with my husband a few weeks ago came to mind that brought back my extreme fear of denatured alcohol.

My husband offered me a sip of vodka because I had a bad cold and he’d heard that strong drinks help with this. They don’t, but I wanted to try a sip anyway just to have an idea of its taste. Then we got talking about the time my ninth grade science teacher distilled alcohol and let us drink some. This would’ve been a totally stupid idea if he were any good at distilling, but well. I had it in mind that we had drank pure alcohol, which my husband said would’ve led to our esophaguses burning up in smoke. Turned out my teacher was really bad at distilling alcohol, because the vodka my husband gave me tasted stronger than I remembered the distilled alcohol tasting.

Then we got talking about mehtanol, a poisonous kind of alcohol, which surfaces at the first distilling round. I remember my father, who worked at my school back then, talking about how some students the year before me were either allowed to taste the first distilling round or almost did so despite not being allowed. I assume it was the latter even though memory tells me otherwise, as I’m pretty sure that teacher would’ve been fired and prosecuted for allowing students to taste something even remotely resembling methanol. My husband joked that if his teacher had allowed him to taste distilled alcohol, even if it was safe, he’d be tempted to fake methanol poisoning just to get the teacher fired.

I was by this time quite scared already. The evening of the alcohol tasting experience in ninth grade, I discovered my vision had worsened. This was due to a cataract, which is a known complication of my eye condition. However, I had the irrational thought for years that if I hadn’t tasted distilled alcohol, it wouldn’t have happened.

You see, I had and still have no clue about the signs of methanol poisoning other than blindness. Even though I ran a much higher risk of going blind from my own eye condition than from methanol poisoning, as soon as I learned about this, I was deathly afraid of methanol poisoning. Since denatured alcohol usually contains methanol, I was scared of that too. I would never touch any surface cleaned with denatured alcohol, afraid that I’d get methanol on my hands and lick it off. Worse yet, in my magical thinking, denatured alcohol could somehow replace tap water. Each time I was about to have a drink of water, I looked at the running tap water to see whether it was blue. After all, in the Netherlands, denatured alcohol is dyed blue.

I still have a pretty bad fear of denatured alcohol. For soap making, I use alcohol spray to make soap bubbles go away, but I somehow never made the connection. As soon as I did, I wanted to discard my denatured alcohol spray. After all, what if some leaked out of the bottle and somehow dripped onto my coconut oil, which I use for lip balm making? Both the spray alcohol bottle and the coconut oil can are tightly shut, but you never know.

I was also somehow scared that I’d accidentally drink denatured alcohol at home. My husband went looking for it to see whether he even had it in the house and he had. He joked that the bottle of denatured alcohol was next to the vodka, which of course made me freak out.

It’s not like I never handle any other poisonous products. I mean, soap colorants and fragrance oils are probably not the healthiest thing either. I also have a few shower products, which I use daily, which state clearly to keep them away from children. I reckon this is for good reason. However, it never crossed my mind to drink shower gel. Not that I would purposefully drink denatured alcohol, but if that can replace tap water, what substance can’t?

Mama’s Losin’ It

Currently – October 2016

Oh yeah, another week and a half have passed without me blogging. Originally, I was planning on participating in #Write31Days this month again, but I couldn’t think of a topic. Then when I had something in mind, I couldn’t get myself to write my first posts, because I was sick and tired all week-end after my sister’s wedding on Friday. So no pressure this month once again. Because it’s already late in the evening and I badly want to publish a post before midnight though, I thought I’d do “Currently” once again. This month’s co-host is Jacqui and our usual host is Anne.

Cheers-ing

I don’t drink alcohol, but I would like to give a big cheers to my sister and her husband for their wedding last Friday. They had their wedding ceremony on the beach. Though it was so windy I couldn’t hear my sister say her vows, it was a beautiful ceremony.

Organizing

My soaping supplies. I have tried to resist the urge to buy more supplies, because I still don’t know whether I’ll be able to soap at day activities once I leave the institution. However, since i still don’t know when I will be leaving the institution, I’ve also thought that I might as well enjoy the craft while I still can. My wheeled bag is so full it won’t close properly now and some plastic bags were tearing, so I had to re-organize my supplies. I originaly planned on keeping some out of the bag unless I’d need them, but I have no clue where else to store them.

Dreaming

Way too vividly, if you mean dreaming while asleep. I have always had vivid dreams and they got much more vivid since starting my antipsychotic in 2010. Though the dose of this medication has been the same for several years, my vivid dreams are getting worse. Yes, I say worse, because it’s no fun.

As for daydreaming, I don’t do that much lately. So much is still unclear that I have little to look forward to except for the very next moment. You see, I’m practising staying present and enjoying the moment more. So far, I’m not very good at it.

Buying

Soaping supplies like I said. I also bought some new clothes for my sister’s wedding, as well as some body care products.

Listening

I recently discovered some new-to-me country musicians that I like. I’m also listening to a lot of audio lectures from a company called Home Academy. I used to listen to the ones I’d bought or gotten as gifts many years ago. Recently, they were added to the library for the blind’s collection, so I can now listen to them virtually for free, sine the membership fee is way less than what I used to pay for individual magazines and lectures and suchlike. The lecture I most recently finished was on the atomic bomb. It had me vividly dreaming about mushroom clouds for days.

What have you been up to lately?